BECAUSE OF THEM
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Aaden-Marcus Vieira
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Aaliyah Jensen
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Aanylah Hutchinson
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Aaron Brogan
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Abigale Vanhoosier
On 12/13/2024 Our sweet Abigale was diagnosed with an inoperable, terminal brain cancer, DIPG. Diffuse Intrinsic Pontine Glioma. Within a few days, Abby had lost her ability to walk independently, barely able to talk, and was not able to swallow without choking unless given bites of food smaller than your fingertip. Abby underwent 30 rounds of Proton Radiation to the brainstem, participated in a clinical trial and later was approved for the Expanded Access Program of the newly FDA Approved Onc201, Modeyso.Abby had great success with the Proton Radiation, as it shrunk her tumor about 50% and she was able re-gain all of her abilities and returned to normal daily living, like school, playing and just getting to be a child! On 10/14/25, her symptoms re-appeared within a few days. She had an MRI, with the results being either Radiation Necrosis or possible tumor progression. She went back on Steroids and started Avastin treatments to lessen the symptoms and this seems to be helping, however she is still having some difficulties and is unable to completely wean from the steroids at this time.We have put this off as long as we could, however we are now needing more financial help. There are several holistic and alternative treatments that are out of pocket and pricey that we are interested in pursuing, as well as her already astronomical medical bills. Her doctor has given us a timeline of a "few months at the most" and while we refuse to accept that and believe in a earthside healing miracle, we are also painfully aware of the expenses we may have in the next "few months." We just want to be prepared ahead of time and not drowning in financial stress during this very hard and unpredictable time.Donate, share, and most importantly, PRAY! With...
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Adalyn Snyder
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Adalynn Mae Jessen
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Addalyn Ann Bourasaw
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Addie Mae Underhill
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Addison Bell
Addison generously contributed her tissue to researchers following her passing in hopes of saving the lives of children who will one day hear “you have DMG/DIPG” and no longer be afraid but grateful for those like sweet Addison who suffered and sacrificed while praying for a cure to come in their lifetime.
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Adilyn Martin
Forever 6 DIPG Angel 12/30/2015 - 05/22/2022
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Adrian Castaneda
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Ainsley Johnson
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Alan Vasquez
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Aldon Blom
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Alexis Reinders
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Aleyah O'Brien
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Allie Andres
#werallyforallie
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Allie Chastain
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Anderson Coy
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Anjalie Bartee
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Anna-Maria Beck
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Annabella Rigogliosi
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Anthony Pappalas
Anthony’s Avengers DIPG Foundation™ focuses on raising awareness and funds for research to cure DIPG, a rare brain tumor in children. Founded in honor of Anthony Pappalas, who bravely fought the disease, the organization aims to impact the battle against this challenging illness.
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Antoinette Smith
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Antonia Gabriella Miles
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Aria Grace Pitre
Aria Pitre of Youngsville, Louisiana was 6 years old.She loved all things rainbow and sparkles. Her favorite animal was a cat and even when her tumor took her ability to speak, we were able to communicate with her sweet “meows” Her favorite color was rainbow and loved eating spaghetti and tacos. Her favorite hobbies were dancing and doing arts and crafts. She had a determination like no other child I have ever known. She never let this disease define her and DIPG never broke her spirit. Aria was the best big sister to Ethan and the absolute pride and joy of her mom Katelyn Pitre and dad Logan Pitre. This fund will assist the Pitre family, and families fighting DIPG like Aria. The family hopes to continue Aria’s legacy of love for others in her Louisiana community and among those fighting this horrific tumor type. We accept donations in other ways:Venmo - PaypalMail checks to Tough2gether Foundation: 2201 Columbian Rd, Wamego, KS 66547Tax-Deductible Giving Notice:Donations made to Tough2gether Foundation are tax-deductible to the extent allowed by law. While funds raised in connection with this family will directly support them, all donations are made to Tough2gether Foundation and may also be used to support other families facing pediatric cancer, related programs, and charitable initiatives at the Foundation’s discretion.
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Aria Menai
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Arianna Joleen Jasso
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Ariella Jung
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Ashley Garnet
She was diagnosed 12/28/18 & passed away from DMG on 9/2/19. She had turned 18 on 8/20/19.
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Aspen Agnew
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Athena Thien-Anh Dao Nguyen
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Aubree Henderson
Forever 5. Born Oct 30, 2017, Diagnosed with DIPG Dec 6, 2022, gained her angel wings May 30, 2023. Sassy and spunky🩷
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Aubree Moore
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Auburn Banks
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Austin Jeffrey Smith
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Ava Handley
Our daughter and ballerina, Ava, was diagnosed in September 2020 with diffuse intrinsic pontine glioma (DIPG). Twelve-year-old Ava developed headaches which got progressively worse and included double vision just prior to diagnosis. We will never forget the day that Ava’s neuro-oncologist said, “tumor,” “brainstem,” and “inoperable,” and “she has about a year to live.” Our hearts and our world shattered. Also, on diagnosis day, we were told the only standard of care for DIPG is radiation, which may shrink the tumor some, but the tumor will grow again. It was inconceivable to us that our beautiful, full-of-life daughter was just given a death sentence with nothing more for treatment than radiation, providing only a few extra months of life. We were living our worst nightmare.
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Ava Leigh Coleman
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Ava Mae Preece
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Avery Huffman
Avery Huffman was diagnosed with DIPG, an inoperable brain tumor, at age six. Despite undergoing treatments, she inspired many with her courage. The #AveryStrong movement gained traction, highlighting her battle against cancer. Avery was named an Honorary Princess by Kristen Bell and captured hearts across media. She passed away in February 2016, but her legacy lives on through the Avery Huffman DIPG Foundation, which aims to find a cure for DIPG.
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Avery Lafferty
In late December 2021, after a long day of skiing, Avery and I were relaxing in the Mount Snow ski club. As she was sipping a hot chocolate, I vividly recall her saying to me, “Mom, that was one of the best ski days ever,” with a lazier than usual smile. I remember being relieved she had not experienced any headaches that day, as they had been persistent, on and off, for weeks. Little did I realize what was to come over the next several hours. Once we made our way back to the condo, Avery’s headache came on with a vengeance. My husband, Paul, and I tried everything to relieve her pain. By 2am it became clear it was not going away. We drove through a horrific snowstorm hoping to get to Yale New Haven hospital, but her pain and the weather were so extreme we only made it to the one- room Emergency Department in Brattleboro Memorial in Vermont; with her sister and dog in tow. “I am so sorry, it is a ‘mass’ in a really tough spot, I am so, so, incredibly sorry.” Those were the words of the doctor in the ED in Brattleboro following her CT scan. After being rushed to Yale New Haven Hospital, Avery had an additional scan which even more clearly showed the tumor in her brain. While in Yale ED in the middle of the night, my husband and I went into a small dimly lit room and sat across the table from a young looking resident with dark hair and glasses to review the results. I do not remember the details of the conversation but do remember his words when we naively asked if there was a potential fix to this. “No”, he said, “I think this is going to be life-changing.” Little did we realize how right he was.
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Avontta Hall Jr
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Beckham Hoagland-Bice
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Beckham Troutman
Beckham sadly passed away July 7th 2025 at the age of 9. Beckham woke up paralyzed in August 2023 while we were on vacation in Florida.. from there we rushed him to the hospital, where he had surgery on his spine and ultimately found out about his terminal disease - DMG. Beckham when through 3 rounds of radiation & a month of chemo. He fought bravely & fiercely for almost 2 years.
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Benjamin Amador
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Benjamin Stein-Lobovits
Benjamin Stein-Lobovits, diagnosed with a high-grade brainstem glioma at 32, turned to innovative treatments after traditional options failed. His search for better care led him to biomarker testing, revealing a mutation that allowed him access to the promising drug ONC201. Despite the challenges of treatment and ongoing financial pressures on care facilities, he remains committed to supporting others and advocating for continued research funding. His journey highlights the importance of sustained investment in medical research and treatment access.
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Bowen Pennington